O water, voice of my heart, crying in the sand,
All night long crying with a mournful cry,
As I lie and listen, and cannot understand
The voice of my heart in my side or the voice of the sea,
O water, crying for rest, is it I, is it I?
All night long the water is crying to me.
Unresting water, there shall never be rest
Till the last moon droop and the last tide fail,
And the fire of the end begin to burn in the west;
And the heart shall be weary and wonder and cry like the sea,
All life long crying without avail,
As the water all night long is crying to me.
–Arthur Symons

This morning while I was working on homework the phone rang. “Hi honey. This is Mom. Talk to your father,” she said. I heard the rustling of the transfer from her to him.
“Hi,” Dad said.
“Hi Dad. I love you. How are you?”
He can’t make sentences that make much sense to the uninitiated, but sometimes (when angels thoughtfully whisper the meanings into my ear) I can understand what he’s trying to say.
“They have me captured here. I want to go home. I don’t know who this lady is,” he tried to say.
“Who is that lady who handed me the phone?” he asked.
“That’s my mom. Her name is JoAnn. She’s your wife.”
“Oh.”
“Dad, are you scared?” I asked.
“So scared,” he said.
I told him I was sorry, that I loved him, that he was the most important person to me in all of my life.
“Really?” he asked.
I told him that I pray for him every day. “I think of you all day long and I worry about you. I want you to know how loved you are.”
He started to cry.
“Hold on, I have to blow my nose.” He blew it loudly right into the phone and we laughed.
For some reason, on this day, May 13, 2009, he knew exactly who I was. Mom told me later that he was trying to call me, but he couldn’t work the phone, so she punched in my number and handed it to him.
He told me he loved my art and that some of it is hanging on the wall. I told him I loved his art too.
He was crying too hard to talk, so he handed the phone back to mom.
And that was that.
Tonight I got another call from my mom. He’s had a psychotic break: thrashing all over the house looking for bad people, hurting himself in his panic, and terrifying my mom. She called for help. She called for help again. She called a third time to say, “Please come right away. He’s hurting himself,” and he had. He has deep gashes on his forehead – two of them. I can guarantee you that nobody wants to sew up the skin of his head. Not with CJD. Hospice has taken him away. It’s likely they’ll have to keep him medicated so much that today’s conversation is the last one we’ll have before he passes away.
My mother wouldn’t go to the hospital with him. “I just couldn’t,” she explained. My brother and his wife are on their way, to make sure he’s settled comfortably so they can call her to say, “Everything’s okay,” so she’ll go to bed.
I am grateful for the chance to tell my father how much he means to me. I’m grateful he understood what I said. Even if it was just a moment in time, love found a way to reach his terrified soul.
Please pray for this gentle man. I’d appreciate it if you would.
So sorry to read about your dad’s illness, that must be very very hard on you and your mother. I pray that everything will be ok for your family!
Comment by Debbie — May 13, 2009 @ 7:34 pm
Cat, I’m glad you had this moment with your father. Your post brought tears to my eyes; my thoughts are with you and your family. Hugs.
Comment by Katie — May 13, 2009 @ 7:35 pm
I’m so sad for you.
Comment by Mae dean — May 14, 2009 @ 8:57 am
dear one, I’m am so so sorry for all of this suffering. you are never far from my heart. love, s
Comment by sara — May 14, 2009 @ 9:45 am